Announcing my short biography of my life with Alport’s Syndrome, a genetic, degenerative kidney disease that causes kidney failure. I document the ongoing fight and struggle, not only with this insidious disease, but also the healthcare and social services systems, while trying to survive.
A personal story of life with kidney failure, from diagnosis to dialysis and finally, transplant. Facing uncaring healthcare and social services systems while fighting against a genetic disease that causes kidney failure, extreme fatigue, hearing loss and eventually death unless treated.
Click the link above on this website for more information about Alport’s Syndrome. Then head to the bottom of the page to find where you can purchase and download!