March is National Kidney Month
The Alport Syndrome Foundation (ASF) is a volunteer-led organization started by families affected by this genetic disease. ASF is a 501(c)(3) non-profit Foundation that gives a voice to all those affected by Alport Syndrome and champions research to find effective treatment options and a cure.
For more information visit the Alport Syndrome Foundation’s website, AlportSyndrome.org
What is Alport Syndrome?
Alport Syndrome is an inherited disease of the kidney that can also affect the inner ear and eye. It is estimated to affect 1 in 5,000 people.
Patients of all ages can exhibit symptoms of the disease; however, the majority of those affected by Alport Syndrome are boys who require dialysis or a kidney transplant by their early 20s. The disease is devastating to families because it often affects multiple family members, generation after generation. There is currently no treatment that has been proven to prevent the development of kidney failure in people with Alport Syndrome.
You can make a difference in the lives of patients and families dealing with this disease by making a donation today or getting involved in a fundraiser – See more at: https://alportsyndrome.org/donate/fundraising-events/
Read my Alport’s Syndrome Biography, Silver Linings on Dark Clouds (My Life with Alport’s Syndrome), all proceeds will be donated to the Alports Syndrome Foundation https://brickoneil.com/silver-linings-on-dark-clouds/
Check out the National Kidney Foundation for general kidney health and information, www.kidney.org